At the XP Family Support Group conference a few weeks ago, we met some wonderful families who face similar challenges. One of those is the Bricker Family, whose 12-year-old daughter Cameron was diagnosed with XP at age 2. Cameron’s XP is a different type than Anna’s, most notably in that Cameron also suffers neurological problems in addition to the extreme UV sensitivity that she and Anna share.
Cameron was featured recently in a very well done news story on ABC RTV6 in Indiana.
You can read or watch her story at this link.
Cameron’s mom and dad work tirelessly to protect her. They also do a considerable amount of fundraising for the XP Family Support Group. I hear they’ve even set up a raffle where you can win a CAR for supporting XP coming soon!
Anna Liberty 
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