Anna and Uncle Bridger

Meet Bridger:

You might be thinking that you’d rather not to meet him alone in a dark alley.  But you’d be wrong.  Bridger may be big and strong, but he’s the kindest, most awesome person you might ever meet.

This picture represents him a little better:

Bridger is Anna Liberty’s uncle.  He’s a great 15-yr-old kid who plays football, serves in his Church, and is pretty much the most popular kid in his class. He’s also one of Anna’s favorite people.  Bridger has taken Anna on trips to the museum, and every Sunday afternoon he spends time playing with her. And he’s been a great babysitter from time to time, too.

Recently, Bridger wrote a paper for his Biology class on Xeroderma Pigmentosum (XP).  He did such a remarkable job on it, I thought readers of this blog would enjoy reading it.

Here is a link to his report: Xeroderma Pigmentosum Project

Bridger – you’re a great Uncle to Anna. Thanks for being part of her life, and thanks for helping to educate others about XP.

Here’s another picture that really shows you who Bridger is:

Anna counts and stacks blocks

She doesn’t seem to like the number 5.

Winter Thoughts

This week it’s been very cold.  -6 degrees cold. VERY cold. And most people don’t like it. But I have another perspective.

 So cold that one friend from California posted on Facebook  that she saw six Utah friends all post pictures like the one above right in a row on her timeline. 

Most people seem to really hate this cold weather.  I’ll admit to sometimes complaining about how cold it is.   They talk of nose hairs freezing and cars not starting. Nobody goes outside and they get stir crazy inside.  Did you catch that? NOBODY goes outside.  This is the time of year that our family is just like everyone else!  There aren’t any kids playing out in 5 degree weather- and if they are, they are just as bundled up as Anna is the rest of the year.

So I’ll take the cold weather for a while, and appreciate what it means to Anna and others with XP.  When nobody goes outside, they get a taste of our indoor living.

That said, I need to get some gloves. My hands are freezing…